mellicious: Astros' very colorful uniforms of the 70s-80s (Astros rainbow uniform)
Hope you all are having a good Labor Day, and that you're not actually having to labor much today. I definitely am not. I'm watching the Astros game and farting around with various online things, and I thought I would come and update now that I'm starting to feel a little more human again.

(As usual lately, possible TMI if you have delicate feelings about medical stuff. But mostly not too much detail necessary, I think.)

I have been having radiation treatments since the middle of July and I am finally, FINALLY all done, yay! I had 30 treatments, and remember that I had already had three treatments before they had to stop because of the damn staph infection, so I've actually had 33 altogether.

Mostly it wasn't too bad but there were several weeks in there where I was just totally exhausted all the time. I worked the whole way through, never missed a day (except for when I was in the hospital before, of course, not much I could do about that one!) I was late a few times but I always got there, during the radiation phase. (Really I would like to have taken at least a few days off but we have been - still are - seriously short-staffed so I just kept on coming in.)

Most of the time they have been treating my whole breast - that's the part that made me so tired, eventually - and then this past week they switched to doing treatments that concentrated on the area where the original tumor was, which helped with the tiredness but caused the bottom side of my breast to look somewhat like raw meat. It wasn't super-painful but it's pretty icky to look at. It's starting to heal already, though. (Think of a bad sunburn with some blistering, that's basically what it is like. Also my whole right breast is weirdly tanned. Back around 1980 it would have been right in fashion, if the rest of me was tanned to match!)

Going in every day (5 days a week, that is) was a pain but they try to get you in and out really fast, and mostly they do. On a good day you're in and out of there in like 30 minutes. Park, check in, go put a gown on, wait for them to call you, go back in the back and lay just so on a table and get protons or whatever beamed at you - the arranging-just-so part usually takes longer than the actual treatment - get dressed again and you're done. Once a week you see the RadOnc doctor but that's usually really quick also. And hey, at least it's on my way to work.

When I was done Friday, one of the techs said, "So, do you want to ring the bell or do you want to leave quietly?" Because apparently it's a tradition, when you finish. People had told me about it, and I said, "I need to ring the bell" - and I did. It's a pretty noisy bell, too. The techs applauded and the waiting room applauded too, when I came out - so I can see why some people might want to leave quietly, but it felt good to make some noise. (I'm pretty sure I said, "I'm free!" to the people in the waiting room.)

mellicious: "I'm bored. Episode 1 bored." (bored Buffy quote)
NOTE: possibly TMI for some people, as far as medical stuff. If you're really triggery. But there's really only one bit in the next paragraph that's gross.

Well, so... going back to the previous radiation narrative, Monday night I had a slight sunburn, it seemed like. Tuesday night my breast tissue just felt kind of weird, but what do I know about what's normal for radiation, right? I was seeing the doctor on Wednesday anyway, so I figured I'd just ask her then. And then Wednesday I went ahead and had the radiation treatment (I did mention this to the techs, but they said the same thing, to talk to the doctor afterwards), so that's what we did. I had also noticed before my appointment that my breast looked...larger. Honestly, what I was thinking was just that I was having a weird reaction to the radiation, but that turned out not to be the case, I guess. The RadOnc doctor looked at it and went, yeah, you're right, that's not good. She thought it looked like my (now three-month old) incision from the lumpectomy was getting infected. so she sent me back over to the surgeon's office (it was way up in the afternoon by this point, and I was supposed to be at work). The surgeon prodded at it and went, "Yeah, this isn't good," and they drained a godawful amount of gunk out of my breast - so, yeah, I guess my breast was larger - and then she announced that she was going to admit me.

I spent three days in the hospital. I got out yesterday. The weird part was that I didn't feel sick. (Surgeon: "You would have.") Missed a whole week of work. Read a whole Expanse novel - that took me big chunks of two days - and some other stuff besides. Watched a lot of TV. All we were really waiting on was test results and meanwhile I was having IV antibiotics every few hours. Rob brought me iced tea and my Kindle and stuff, but I didn't try to get him to stay with me for more than an hour or so a day. He was going and coming from work, and I just didn't feel the need to be that needy, you know? (And I also decided that I wasn't going to say anything about it online til I was out. It just seemed too complicated to go into, I don't know.)

So, let's see, Wednesday night was when I got admitted. There's a new(ish) little UTMB hospital in League City which is in the same complex where I was having radiation, so all I did was move my car around to the other side. (The only hospital I'd ever been admitted to in my entire life before this was the Galveston one, going back to when I was a kid.) By Thursday it was noticeably better, but I still had to stay for the antibiotics. They don't do IV antibiotics on an outpatient basis, I knew that. By Friday it was even more noticeably better, but the surgeon still wasn't satisfied, and she said if it wasn't way better on Saturday she was going to open it up and clean it out. So I spent Friday night thinking that was likely to happen, but they also switched antibiotics again, and on Saturday she was happy, and let me go home (after one more round of antibiotics). So now I have gigantic horse-pill antibiotics that I have to take for SIX WEEKS, as well as pain pills that I'm not even going to take unless I start having much more pain than I have had so far. But on the other hand, this whole thing could have been so much worse. (And the surgeon, always cheery, said, "You're not out of the woods yet!" - I guess that was supposed to keep me taking my pills, for one thing.)

Luckily we do have really good insurance. (I feel like I should, like, knock on wood for even saying that, though.) Oh, and also I can report that hospital food is dramatically improved since I last had to try and eat it. Thank goodness.

mellicious: Photo of a road framed by spring-green trees (spring trees)
 I finally started radiation treatments yesterday. I'm kind of fascinated by the equipment - it has all these pieces that move around and paint laser targets on you and stuff. The clinic where I go is brand-new so I'm sure it's the most state of the art equipment - I keep wanting to ask a bunch of questions but they make a big deal about getting you in & out of there in half an hour or so, so you can go about your life. And I grant that that's important, so I can't really demand a full tour or anything. And you're supposed to stay very still - of course - but I keep wanting to look around. (You can't really do that much, either, though.)

So far the main symptom has been a slight sunburn. But I'm only on #2 of 20. We'll see how it goes.


In other news, we had a little fun a couple of weeks ago when Houston got all that rain. We work 'til midnight, remember - and we drove home in pouring rain, and then when we got to the freeway exit everything was flooded. We drove carefully around for a while trying to see if we could get where we needed to go, and basically we couldn't. After some time, the feeder roads cleared up, and we got a little further along. But then the road home was completely flooded - they were fishing cars out of it. They said it was only passable with a very large truck, which we definitely do not have. The emergency people that were out in the road, whoever they were, showed us a place where it was high ground and said we could wait it out if we wanted to. And we tried that for a while. I even fell asleep for a while, and when I woke up it was 2am and Rob was watching the road and it pretty clearly wasn't cleared yet. And Rob had to be back at 1pm on Friday. So I said, "I wonder if we can get back on the freeway," and it turned out we could - and we drove back to Galveston and checked into a hotel. We still didn't get a whole lot of sleep but we got some, and we got a shower and breakfast. And our local city government's e-mail list announced later in the morning that the roads were clear and that (amazingly) no houses had flooded.


And the only other thing I have to say is that I did drag Rob back to Endgame this past weekend, so that's three times now. Actually I noticed a lot of stuff this time that I'd missed in the overload the first two times. (I told Rob, "Thank you for giving this nine hours of your life.")


Movies seen in 2019:
1. Bumblebee
2. Into the Spider-verse (second time at this one)
3. Lego Movie 2
4. Captain Marvel (twice)
5. Shazam!
6. Avengers: Endgame (three times)
mellicious: Scarlett Johanssen as Black Widow (Black Widow - Marvel)
I meant to post about Endgame sooner than this, but I've been sick. When I went to see the MDA doc the other day, I had a slight temperature (99-ish) - they seemed slightly alarmed, but I said that I had had a sore throat for a couple of days and they seemed mollified - and then that was followed by coughing and some sneezing, so I imagine it was a virus of some sort. (Oncologists seem a bit jumpy, in my experience so far, but I guess having immunocompromised patients will lead to that.) I was trying to work through it, but finally I called in sick on Friday. I try not to call in sick more than I can help, because somebody has to be there to replace me if I don't come in. Luckily there was somebody willing to cover for me. And I'm still coughing a bit, but I'm finally feeling better now.

Since we're already on the health issues, I will tell you about the other medical updates - I still haven't started the radiation treatments, because they were waiting on the test to come back to see whether they thought I would benefit from chemo. The RadOnc doctor was very firm on having chemo first if I needed it. But the test finally came back and my oncotype was low, my doctor said, which I guess means not as invasive? (i didn't think to question it at the time). Anyway, no chemo, yay! And I have another RadOnc appointment next week and I assume we'll finally get the radiation treatments under way shortly after that.

SPOILERS BELOW...

I liked Endgame a lot. We have actually been twice - on the first day and then again yesterday.

big spoilers under this cut! )

I'm ready to go a third time. I imagine it will be a couple of weeks before I can talk Rob into it again, though - he's not as big a fan of multiple rewatches as I am.


Movies seen in 2019:
1. Bumblebee
2. Into the Spider-verse (second time at this one)
3. Lego Movie 2
4. Captain Marvel (twice)
5. Shazam!
6. Avengers: Endgame (twice)
mellicious: Photo of a road framed by spring-green trees (spring trees)
We just got back from seeing Shazam! - we didn't go last week because Rob wanted to see Pet Sematary, and I figured there'd be less kids this weekend anyway. It was really quite good - even though I knew the Rotten Tomatoes scores was good and stuff (currently at 90% on RT, I just checked), I was still surprised how much I liked it. Other than Wonder Woman, I can't think of any other DC moves of recent years that I've liked as much. Since we got home I've been watching Easter-Egg-type videos and running periodically into the bedroom to treat Rob to especially good bits of DC trivia.

(Rob likes to spend some time on the laptop before he goes to bed. He watches YouTube stuff about movies, too - mostly not the same movies - and also a bunch of workout stuff, of course.)

Here's the updated list of movies I've seen this year, which I have been chunking into the bottom of my movie posts recently. Here it's getting moved up because I want to talk about it - mostly about why it's not longer.

Movies seen in 2019:
1. Bumblebee
2. Into the Spider-verse (second time at this one)
3. Lego Movie 2
4. Captain Marvel (twice)
5. Shazam!

Actually that's not a terribly slow pace by my recent standards - we're basically 3-1/2 months into 2019 and I've been to a movie at a movie theater six times. I think a couple of movies a month is more or less my normal pace in recent years. Some years less - but further in the past we used to go pretty much every week. In Galveston we lived really close to the movie theater for many years, and I think that made a difference. (Rob used to walk, some of the time. It was maybe a mile and a half, so I don't remember ever actually doing that, but it was a little quick jog down the Seawall in the car, anyway - five minutes, tops. We had it timed where we would leave about the time the schedule said the movie started, and we never missed the beginning of the movie.)

Rob goes to see horror movies without me, because we long ago established that I don't go to those, and sometimes he also goes without me to various other things I don't feel like seeing. I wouldn't go to Hotel Mumbai because it just sounded depressing, and I wouldn't go to Us because I watched the trailer and went, Hell no, that's a horror movie! (I did go see Get Out after being assured that it wasn't *really* a horror movie.). I think I mentioned before that I wouldn't go see Glass because I hadn't seen Split, but actually I don't think I missed anything on that one, anyway.

I used to go to movies alone, too, but I hardly ever do any more. I think partly it's because the window before things come out on video has gotten so short that I don't bother, in general. The only movie I can remember going to alone in recent years is Doctor Strange, and that was mostly because it was on a weekend when Rob was out of town. I mostly care about going to the theater to see superhero movies and other big-spectacle kinds of things - Star Wars, etc - otherwise I just figure I can wait and watch them on TV in a month or two. (On the movies I really like, of course, I do both - I go see them two or three times at the theater and then see them more times at home, as well. I watched Infinity War twice in one night, recently. But then I'm in ramp-up-to-Endgame mode at the moment. Barely more than a week away now! We have our tickets and everything.)


In non-movie news, I was going to do a medical update but really there's not a whole lot new to say, anyway. Quick version: I've had a consult at MDAnderson, and I have another one with the RadOnc doctor in a week or so, so the radiation treatments will get underway before too long, I guess. I can't say I'm feeling a great hurry about that, but I know it needs doing.

Spreaking of which, right now I gotta go do my taxes. Ugh.
mellicious: Quote from Buffy the Vampire Slayer's 1st episode: "The earth is doomed." (Wonder Woman - DC)
Well, the medical update first, which is really that there is no update, since I still haven't started with the radiation. I don't guess there's a tearing hurry about it, really, but I've been bugging various people about it and I'm not going to drop it, don't worry. I'm still healing a bit anyway so actually I wasn't mentally ready to start that yet anyway.

We went to see Captain Marvel and both of us really liked it more than we expected to and we're going to see it again tomorrow since there's really nothing else to see anyway. I don't think I really have anything profound to say about Captain Marvel though. (Except maybe that Brie serving popcorn in uniform was kind of the cutest thing ever.) Now I'm counting down to Endgame on my birthday. (I will be 59, y'all. I'm kinda freaking out about that.)




Movies seen in 2019:
1. Bumblebee
2. Into the Spider-verse
3. Lego Movie 2
4. Captain Marvel
mellicious: "I have nothing significant to say" (in a thought bubble) (nothing significant - quote)
 I've either been sleeping a lot or not at all - basically I'm swinging back and forth between those two - which is partly why I haven't gotten around to posting again. I am fine, though, just recovering. The pathology reports came back and they were good - not a very invasive form of cancer, and they think they got it all. I still have to have radiation treatments though. The way the surgeon put it was "a lumpectomy plus radiation equals a mastectomy" - I assume that she meant that the outcomes are comparable.

I did have to go back to the ER last weekend (I mean a week ago, right after the surgery, not this past weekend) because one of my incisions started getting infected. But I had a week of Bactrim and that's resolved itself. I apologized to Rob for making him come with me because we were there for hours, and really I could have gone by myself, as it turns out. But we didn't know that in advance, of course. Rob sat in the lobby and kicked his heels for a couple of hours - I kept calling him periodically and giving him updates - and finally I had them bring him back to the room so at least he could talk to me. They weren't really that busy - the reason it took so long was that they felt like they had to get hold of the surgeon, or at least somebody from the surgery department, and make sure they approved of what the ER was doing. And it was Sunday afternoon and naturally everybody was scattered to hell & gone. But eventually they gave me the antibiotic prescription and let me go.

The surgeon called me on Friday about the path reports, and then I went in to see her today, and she seemed surprised that I didn't have appointments with Radiation Oncology already. As far as I knew we were waiting on the pathology stuff - I love it when doctors think you're supposed to read their minds. (But I liked the surgeon a lot, overall.) And between Friday afternoon and Monday noon there's not a lot of working time for RadOnc to have called me! Anyway, I assume this will get sorted soon.

Aftercare

Feb. 22nd, 2019 01:03 am
mellicious: "I have nothing significant to say" (in a thought bubble) (nothing significant - quote)
I was just reading my "after visit summary." Apparently I was supposed to eat lightly today. Oops - we ended up at Jason's Deli, because I was starving. I did think about it and I said, "They would have told me if I was only supposed to eat soft food or something, right?" I dunno, maybe they said it and I just didn't take it in. But I gather from reading all that that they were primarily worried about nausea, and that definitely didn't happen.
 
Well, everything went relatively smoothly. I had a spate of energy and wrote some stuff on the TUS board, so let me just quote myself:
 
I had a lumpectomy and apparently also had a lymph node removed earlier today. I am at home and awake (although if I say anything really stupid, can we agree to blame it on the drugs?) and I'm sore but I really don't feel that bad, to my surprise. I'm guessing the soreness is likely to be worse tomorrow.
 
Actually, nobody thought to tell me before this morning that the node removal thing was even a possibility, but it's a heckuva lot better than waking up with no breast, which I gather was a thing that used to happen. And I know the lymph system is how it's most likely to spread. I was groggy and wasn't asking a lot of questions when the surgeon came in afterwards, but I have an appointment with her next week, and I probably ought to quiz her on this point a bit, because they don't seem to think it had spread, so I don't know if the node thing was just a precaution or what. Unless the pathologist comes back with a bad answer that nobody seems to expect, this is almost the most minor breast cancer possible. (I feel like I'm tempting fate every time I say something like that, though.) Even the surgeon said she couldn't feel the lump, and she also said she was impressed that the radiologist caught it on the mammogram. It's something like 8mm, which I think of as being the size of a fairly small bead. I do have to have a few radiation treatments even in the best case.
 
I only wrote a couple of paragraphs about this on Dreamwidth before today, and I've told very few people in real life. I think I may have avoided talking about it too much because I didn't want to hear any breast cancer horror stories. I'm not sure. Also where I work it's pretty busy and I really don't want to be discussing my medical stuff with every random medical student who comes in the door. But I'm not completely opposed to talking about it now that the surgery is over. Which I guess is good, because if my hair falls out after the radiation, all in-person secrecy is going to be out the window.


Update

Feb. 18th, 2019 11:58 pm
mellicious: "I have nothing significant to say" (in a thought bubble) (nothing significant - quote)
Lumpectomy is Thursday. We've already paid our estimated chunk of it - in fact, the estimated total for the lumpectomy is only slightly more than the actual total for the biopsy was. Somehow that made me feel obscurely better. Like that means it won't be any worse than the biopsy was. Actually the worst part of the biopsy was I had to keep my arm up over my head the whole time, but this time I'll be asleep so I won't have that problem. Anyway, I'm okay so far. I'll report back afterwards, but don't expect that to happen too quickly. Full anesthesia takes a while to recover from, as I recall.

The Big C

Feb. 9th, 2019 04:09 am
mellicious: "I have nothing significant to say" (in a thought bubble) (nothing significant - quote)
Well, so the biopsy was positive. I am actually not completely freaking out about it because it's very minor, as cancer goes. It's small and it's away from the chest wall (which apparently is good) and there's no lymph node involvement (I know that's good, it has to do with the way cancer can spread, for one thing) - I just have to have a lumpectomy. And that's really all I know right now. I have an appointment with the surgeon next week so that's when I'll know more.

I didn't tell anybody but Rob and my boss and my sister, so far. I definitely want as few people as possible to know at work because I don't want to have to deal with a million questions about it. Thank goodness for HIPAA, because I can tell you from personal experience that in the old days everybody in the whole hospital knew everything, pretty much immediately. It's a small town, where I work. (Far as I know, nobody I know in real life follows me here, so I'm not worried about you guys.)

I had a bad feeling about it - the first radiologist I talked to acted like it was probably nothing, but then after that I could just tell from the way they were talking that it sounded more worrisome. Then I got a call this morning from a doctor (rather than a nurse) and by the time I woke up he had called several times. So that didn't sound like it was going to be good news. But cancer is not the death sentence it used to be, in general. I've even managed to completely forget about this whole thing for long stretches of the day today.


Um, as far as the rest of life, I'm still playing Covet Fashion with my sister - have I talked about this here? and my god, is she competitive. I'm actually getting pretty good scores though so I may give her more of a run for her money than she expected. Also I finally went to my second movie of 2019 and it was a repeat - Into the Spider-verse. I liked it even better the second time. We will probably go see the Lego thing this weekend but we are waiting til Sunday night so there will hopefully be fewer kids.

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mellicious: Quote from Buffy the Vampire Slayer's 1st episode: "The earth is doomed." (Default)
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